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Joel Clausen on Bryce’s Battle | Dad Talk #20

“There is no cure. It is fatal.” That’s what doctors told Joel and Andrea Clausen last November. Words no parent wants to hear. The doctor was talking about their youngest son Bryce. He was diagnosed with Krabbe disease – an extremely rare condition that affects the brain and nervous system. Doctors told them Bryce had just a few months left and that they should enjoy the time they have together. Joel, Andrea, Bryce and their oldest son, Levi, did the best they could. They cried and spent time together and then decided they would turn their tragedy into something good. Bryce’s Battle became a mission – a mission that could impact families around their home state of Indiana.

We talked with Joel about Bryce, their journey and how they got lawmakers to make sure fewer families will experience what they did.


About the author, James

Thank you for joining me for the Positively Dad journey! My name is James Shaw and I'm a husband and father. I live in the Tampa Bay area with my wife, Terri and our young daughter, Naomi. The goal with Positively Dad for us to think, learn and grow. It's easy to get caught up in the day to day and miss opportunities to become amazing fathers. I trust that the conversations we have on Positively Dad will help you see that fatherhood is truly a journey and that we are better together than figuring it all out on our own.

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